Yesterday a six year old called Ethan showed the Adults what respect for the disabled looks like.

Yesterday was a sad day in our family, it is each year it’s the anniversary of my mother-in-law’s death and this year it was one week out from my own moms death! Tough day.
Ella My other more beautiful half is one of only two children in her family both girls, so we arranged to meet in kissena park and she bought her middle son Ethan.
My sister-in-law has a 19 year old serving in the US marines currently deployed and then a 13 year gap and a 6 year old and then a younger one.
Ethan is a very quietly spoken but hyper active afraid of nothing kind of child, as we spoke about momma he climbed the jungle gym but not like other kids on the inside he climbed the outer skeleton making all who watched cringe he would simply laugh nothing scared him. After a half hour of play we started to roll, Ethan walked beside my chair if someone walked into me or cut me off or walked into Zeus my service dog he would quietly admonish them for rudeness and uncaring than ask me if I was ok remember he’s 6.

Diana and Ethan live about 3 miles from us, about 2 from the park we should have headed south to their north but we decided to go to 7-11 for a juice with them. We walked about half a mile and when we entered the 7-11, the door said wheelchair accessible as I tried to roll with the little man I kept hitting aisles not wide enough so when I pointed it out to the management they didn’t care.
I felt a touch on my arm “aunty Mia If you want something from those aisles I’ll get it for you”! I almost cried, six grown ass adults in the room, two of them own the store and it’s the six year old who steps up.
As we were leaving he turned to them and us and said “It’s not very nice of you to not make your store ok for wheelchairs it’s rude, and he walked beside my chair to the curb and then he said “you couldn’t get a slurpee aunty the aisle was blocked ,mine’s purple I’ll share” again I held back tears even a six year old knew I loved purple and as he and his mom headed for the bus home I told him what a delightful young man he was and how his marine brother would be proud and he replied “my brother is a hero he is fighting for his country”! As a proud member of a marine family I agreed with the little man, but as a disabled woman who lives with bigotry and a city wide “we don’t give a shit attitude” most days, right there that 60lb little man was my hero and my hope for the next generation.

George takei bullys the disabled because he sees one stand out of a wheelchair? where did he go to medical school

Bullying Disabled People Is Never Ok – But It’s Even Worse When You’ve Got 8.7Million Fans Watching

The story below was in huffington post UK about comments made by gay icon george takei bullying the disabled.

The comments were about seeing someone standing out of their wheelchair, I sufferred this when first in a chair. my disablity was a reoccurrence of an from a spinal cord injury sufferred in my 20’s that the doctors thought they’d fixed. But like people who sufferred polio in the fifties and had it return in their retirement years, my damage was so severe originally and did so much nerve damage that from my mid forties it was degenerative and I went from walking sticks to scooter to chair permanantly with great speed.
But even when first in a chair I could still stand for a few seconds. I would post a pic on facebook of Ella and I out socially with me standing for the photo, and would be unfriended by people who saw it using foul language calling me a fake.
What they didn’t see was the people each side of me with their hands behind me supporting me, or when It was just me I was leaning against a wall and after the pic I would immediately collapse back into my chair exhausted.
There are over 1,000 diagnosis that can require the use of a wheelchair, most of them you can still stand you just can’t do it well or for any length of time so the chair makes your everyday life achievable. Up until this story I admired george, now he is nothing more than an opinionated old queen who should mind his own business. It hurts bad enough when the average joe abuses you, but they feel armed and righteous in doing so when someone famous holds the same opinion. Read on and form your own opinion I’m impressed that it was written by a fellow wheelie.

We all love a bit of George Takei, don’t we? Of all the celebrities on social media; he probably wins for using it most effectively. Well, possibly second only to Stephen Fry. “Successful social media strategist” must be on the same bit of twizzly DNA as the gay gene. It would explain how I’ve managed to get more than 2,000 Twitter followers despite mostly just moaning about the waiting times at my doctors’ surgery.

I’m grateful for his outspokenness on matters relating to LGBT equality. His pictures frequently made me roar with laughter. Until this weekend when the laughter stopped.

On Saturday Takei posted on both Facebook and Twitter an image of a wheelchair-using woman standing up to reach something from the top shelf in a store. The picture is captioned “there has been a miracle in the alcohol isle” [sic].

I know Takei didn’t create the meme, I’d seen it before this weekend. But he has 1.3million Twitter followers and nearly 7.4million Facebook fans. He introduced a sum total of 8.7million people to this image.

Lots of disabled people were offended by this post and the harassment it encourages and told him so. This prompted a follow up post from Takei saying:

Fans get “offended” from time to time by my posts. There hardly is a day where something I put up doesn’t engender controversy. Concerned fans, worried the sky may fall, ask me to “take it down.”
So I’m also going to ask them also to take it down – a notch, please.
I wasn’t one of the people who asked him to take it down, I hadn’t actually seen the original post until after I saw the “ner ner screw you” statement.

I had no concerns about falling skies, but what I did have was a fear of disablist hate crime being escalated. A fear that’s not unfounded.

There’s this huge misconception that if you can stand up for even a second, you must be faking your impairment. For that matter; you get called a “faker” if you can move your legs at all. I remember once, long ago in my stand-up days, I was on stage in my wheelchair and I crossed my legs. I didn’t even notice I’d done it; I guess I must have been slightly uncomfortable so the subconscious part of my brain decided to do something about it.

This prompted a heckler to shout “Faker! You moved your leg!”

I had a microphone and a smart mouth. It doesn’t take a genius to guess who came off the worst in that situation. Even his girlfriend looked ashamed to be seen with him. I was lucky I had an audience on my side. That’s not always the case when people move their legs. Sarah said to me “I once had a woman come running over from the other side of the shop literally screaming “I saw you move your leg, you ****”. Luckily there were other people around or it would have been terrifying.” On the subject of Takei she added “People simply don’t realise the damage this sort of “joke” can lead to. (or don’t want to believe it)”

I have a condition that means that my bones break easily and my tendons and ligaments aren’t strong enough to do their job. Most people have tendons and ligaments that are like sturdy string: They have the tensile strength to make sure joints only bend in the direction they’re supposed to, and they’re also strong enough to stop the joint from dislocating. Not me: All my joints have either been shattered or they bend backwards. And occasionally sideways or in other directions joints generally aren’t supposed to go. Last Friday I managed to dislocate my knee by opening a window.

So I use a wheelchair a lot of the time because walking on smashed-up joints hurts. Walking with knees that bend backwards hurts. After a while my joints swell up so much from all the strain exerted on them that they just stop moving at all. It’s not only for pain purposes that I use a chair: I’m only physically capable of walking extremely slowly and having such wobbly joints means you could knock me over by breathing in my general direction. And when I hit the floor I almost always manage to break at least one bone. I’m 35 years old and have had roughly 75 fractures.

But – despite needing a wheelchair for anything more than a couple of steps – I can stand up to reach something from a supermarket shelf. The person being mocked in that meme could so easily have been me. It’s sheer luck that it wasn’t.

My friend Jack has experienced abuse while doing the shopping. He said “I’ve had people get quite abusive because of doing this, all of a sudden because I can stand I’m a scrounger, shirker and many more other horrible names.”

Another friend, D H Kelly, has learned to self-police to avoid getting grief: “I’ve not been abused but get more glares and mumbles than I could count. I’ve known to linger suspiciously for an inordinate amount of time until the supermarket aisle has cleared so I can stand and reach for the yoghurt without being noticed.” She lives more rurally than me. Living in Central London I’d be sat there until about 4am if I waited for the aisle to empty of people before standing up to get something.

Supermarkets aren’t the only place where disabled people aren’t allowed to stand up without the risk of mumbles, verbal abuse, or ending up an internet meme with 8.7 million people laughing at you. Abbi told me that “the train station where I live is unmanned so I have to get out without a ramp. Usually my brother is waiting for me on the platform to help me off, but sometimes he’s not there in time, so I’ll step out and pull my chair down after me. Other passengers will almost always help me lift the chair out, but on occasion – usually in the evening when people have been drinking – I do get dirty looks, and have been told I’m faking or ‘milking it’. I try not to pay much attention, because I’m so often amazed by how helpful complete strangers can be in that kind of situation, but it is upsetting. It’s hard enough trying to navigate inaccessible situations alone, which can be both stressful and painful, without being openly abused for it.”

My friend Charlotte said “One of the most upsetting encounters was when someone told me I was a waste of the NHS’ money and clearly wasn’t disabled because I was pushing my empty wheelchair / leaning on it for support across the grass.”

Lisa Hammond told me that comments she’s heard include “are you just lazy?” And “oh my god you’re such a faker.”

This ongoing background noise of bullying for existing while disabled is unpleasant enough. But it can get so much more serious than just verbal remarks.

My friend Pippa walks with a crutch. She was once followed home by someone yelling “f***ing DLA stick” at her. Can you imagine how vulnerable you would feel with someone like that knowing where you live?

My friend David was one of the disabled people that posted in reply to Takei on Facebook. He explained in his comment “I’ve been physically assaulted for walking while disabled, I’m well into double figures with verbal abuse, usually claiming I’m faking my disability for welfare fraud. And that’s pretty much a typical experience for all my disabled friends. Having influential figures like George Takei publishing a meme that reinforces disabled=fake is incredibly damaging to disabled people.”

Adam said that the attacks calling him “a scrounger and fraudster have become beyond the joke. I have even had to face an audit under Caution by [JobCentre Plus] when someone contacted benefit fraud line to say I was not as disabled as I made out to be.”

Adam’s not alone. In fact 96% of calls to the National Benefit Fraud Hotline are malicious or timewasting. That’s a lot of people really putting a lot of effort into their disablist harassment to make sure their victims suffer as much as possible. I bet they all found the meme Takei shared to be hilarious.

The really galling thing about all of this is that just 3 months ago Takei received an award for making “a significant difference in promoting equality.” Condoning and encouraging the bullying of disabled people does not promote equality. Far from it.

I’m not perfect. I know I’ve said offensive things in the past. Sometimes without thinking, and sometimes because I didn’t understand the issues involved. When people point out that what I’ve said is offensive, I apologise and try to learn from the situation. I’m hoping that Takei didn’t mean harm when he first shared that picture. I’m hoping that he shared it out of ignorance. Perhaps he genuinely thought that all wheelchair users are completely unable to stand up. Perhaps he didn’t realise just how much harassment disabled people face for trying to do such a simple thing as going to the supermarket.

Where he really screwed up was in his refusal to back down when countless people commented on the post explaining how offensive it was. Plenty of people shared their experiences of being on the receiving end of disablist bullying; a fire Takei was liberally pouring fuel onto. His reaction wasn’t to learn from what people were saying, it was to tell the victims of harassment to “take it down – a notch”. I wonder if he’d say the same thing to gay people telling him about their experiences of homophobic bullying for having the audacity to be true to themselves in the supermarket?

Since this weekend he’s posted this cartoon satirising discrimination against gay people, adding his own comment that so much bigotry and discrimination comes down “it’s icky”. As a gay person I’m deeply grateful that someone so prominent is so defensive of my (recently won) right to marry. But put into the context of his post mocking disabled people four days earlier my first thought was “I guess he thinks I’m icky then.”

In the UK around 18% of the population overall have some kind of impairment. But this rises to 45% of people over state pension age. I’m guessing that the figures are roughly similar in the US.

Takei is 77. If he hasn’t yet acquired an age-related impairment like arthritis, the chances are reasonable that he might at some point. A lot of older people with arthritis, like my late nan, are able to walk short distances, but need to use a mobility aid for longer journeys like the trek around a giant supermarket. If Takei – or one of his friends or relatives for that matter – was just trying to do the weekly shop and stood up for a second to grab a bottle of wine to serve with lunch, and ended up being a joke that 8.7million people were laughing at: I wonder if he’d still find it so funny?

Follow Lisa Egan on Twitter:

Excuse me doctor if I ask you something and you know the answer why not share?

I have written on this subject before yet nothing changes, medicine like restaurants or new cars or clothes is nothing more than type of commerce. I have a need the doctor has a product to fill that need? Simple so why when I present my need do medicos being paid disgusting amounts of money to fill my need feel its ok to do a half ass job?
An example I have shared before is of my gastroenterologist, who when told I was having bouts of diahorea immediately panicked and ordered disgusting invasive tests, yet she knew I was on a large dose of magnesium and magnesium causes diahorea? Why did she not simply say “stop the magnesium?”That gastro was the best in New York , the best in her field,

My neurosurgeon is also the best in his field, the head of the department of one of the largest hospitals in America and being that he was Jewish and momma was we often shared with him that we thought mommas ghost would visit because we didn’t smoke yet I often smelled smoke in the apartment and he would laugh. Well that very same doctor was on nbc this morning telling the world if epileptics smell smoke or burnt toast where there is none it’s an aura predicting a seizure due very soon.

For 7 years I have lived in this apartment, for seven years I have smelled smoke, and for the same seven years I have had uncontrolled seizures and he did nothing and said nothing Phoning it in? Hell yes. We could have dealt with the seizures in the first year, maybe changed my meds and then the last six could have been so much better.

I have spinal cord injury at the lumbar level, and when I was injured MRI’S didn’t exist, cat scan was state of the art, so they x-rayed up to my waist as did they cat scan and treated the lumbar region. I was in the spinal unit for several months and they had done their job and after two years of therapy I regained use of my legs but always lived with pain and discomfort and as I got older the injury took over and once again I could not stand or walk this time it’s for ever.
For the last 25 years I have lived with losing feeling in my arms for up to 6 months at a time, also feeling like my limbs suddenly have no feeling for hours, and days and tingling in my extremities and severe neck pain and muscle problems from my shoulder blades to my skull. Once again I visited the best doctors in the field on two continents, and was referred to shrinks because they thought I was imagining it. A year ago a doctor treating me for a torn rotator cuff noticed me rubbing my neck and took films and asked “when did you break your neck” turns out the same time I had my spinal cord injury to the lumbar region I also injured the spine at that the cervical region to a lesser degree but still there was cord damage and the bone around the damage had fused four vertebrae together crushing nerves. Twenty five years of being ignored and living with physical hell because they didn’t listen or do their homework.
Do you have doctors phoning it in? Screwing with your life write and tell me

Australia beats Canada to win Wheelchair Rugby World championships

Reposted from a online story by abc broadcasting Australia

Australia is the new wheelchair rugby world champions following a physical 67-56 defeat of Canada in Odense, Denmark.

Veteran Ryley Batt was unstoppable, scoring 45 goals in the final of the Wheelchair Rugby World Championships as the Steelers earned their maiden world championship – breaking up the north American dominance of the tournament in the process.

The United States have won four times, while Canada triumphed in the other two years – but that counted for little on Sunday as Australia overcame a physical opening to pull away late in the third quarter.

Australia also becomes only the second nation in history to hold both the Paralympic and world championship titles concurrently.

“World champions, Paralympic champions, this team just keeps getting better,” coach Brad Dubberley said.

“It’s a huge accomplishment.”

Scores were locked at 15-15 at quarter-time, and it was not until a surge of goals sparked by Batt and Chris Bond late in the third opened up a gap that allowed Australia to take a 48-40 lead into the final break – and ultimately allowed them to close out the win.

“It feels amazing. This is everything that we wanted. I’m finding hard to put it into words,” said Australian captain Ryan Scott, who was playing in his fourth world championships.

“I’m lucky because I have such a great team to work with. To be honest, it is an easy job to captain this team.”

Scott said it was extra sweet in 2014, after the Australians were thrashed by the United States in the gold medal match of the 2010 world championships.

In addition to Batt’s stunning haul, Bond (19 goals) and Jayden Warn (3 goals) also got on the scoresheet for Australia.

The difficulty faced by the caregivers of the disabled getting them to wear hearing aids and other types of aids just got a little easier.

When you’re a parent you face day to day difficulties getting your kids to do everything from potty train to eating broccoli imagine if the difficulty was getting them to wear leg braces or hearing aids or thick glasses? Life is tough enough for the parent imagine being the child facing the first day at kindergarten or a new school lifes tough enough.
Well just like the ads on the back of the comic books in the 1960’s telling skinny kids they didn’t need to have sand kicked in their face anymore because Charles atlas could bulk them up, marvel comics has stepped up again. There is now a super hero that wears a hearing aid and there have been a few who were blind and even now for lgbt kids there was last year the first transgender super hero and just recently several established characters in the super hero realm have had story lines written when they come out.
Imagine halloween this year, your child with hearing impairment can go as a super hero who is deaf or your visually impaired child can be a war veteran with a secret alter ego of a super hero suddenly your job as a parent just easier didn’t it? Below is a list of the newest super heroes that acknowledge that not everyone is perfect physically.

One of the best known is dare devil a blind military veteran.

There are many even batgirl who are in wheelchairs.



And if your child thinks cool people don’t use hearing aids tell him to check this guy out.


But please remember real heros wear khaki so if you’re child has a prosthetic and needs reassurance that tough guys use prosthetics tell him to check out the wounded warrior website and thank a veteran for all they do.

please complete this short survey on personal safety of the disabled community

My friend will matay Needs these Questions answered simply yes or no so we can establish statistics on how our community of the dis and otherwise abled community feel concerning personal safety please help and share this blog post Thank you-

To my fellow disabled persons.
I have very important questions for those of you whom are disabled, like me–disabled regardless of diagnosis;

1) Do you fear for your, or your families, safety because you are disabled?

2) Do you feel law enforcement can affectingly protect you, if a threat should arise?

3) Have you ever been a victim of a crime or abuse–while you were disabled?

These are “very important questions” for which I need answers from my disabled community.

I promise these questions are for a “cause” I am going to take on. One of which will help all of us. You will be hearing about it soon.

Please “share” this post.I need as many people to answer.World wide.

I need an honest yes or no answer.

Three questions; three answers, yes or no.


Reposted from an online story By Sarah Wallace
Friday, August 08, 2014
BRONX (WABC) — Family members of mentally challenged adults make disturbing claims of abuse against a group home in the Bronx, and now the State Justice center is investigating.

“When I saw Bianca, she had a blue and black eye and I said wow,” said Carlos Ramos.

Carlos Ramos can’t even bear to look at the pictures he took of his severely disabled daughter, Bianca.

“I don’t want to see it,” he said.

Ramos visits his daughter every weekend at the Union IRA group home in the Bronx when he saw her black eye during a trip in May, he says he demanded an investigation.

Sarah Wallace: “They told you that a staff member hit her in the eye.” Definitely.”

Ramos: “It was physical abuse.”

He says he could never find out who did it or what happened to them.

Ramos: “How does somebody do that? That’s what hurts me so much. How does anybody do that to my daughter?”

Or to Tony Kearins’ daughter, Lauraa Kearins’s sister. They say they were told earlier this week that 45-year-old Debbie Kearins had been taken by staff from the Union IRA group home to Lincoln Hospital.

“They said it was allergies,” said Sarah.

What is even more disturbing is a hospital report Eyewitness News obtained that says the person from the group home who escorted Debbie into the emergency room abused her there.

Watch Sarah Wallace’s complete investigation tonight on Eyewitness News.