It matters Not That I Have Wheels And Roll In This Life, For In The Next Life I Shall Have Wings And Fly!

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Happy fourth of July a day when you party over eat and over drink? Unless you’re a homeless veteran on the streets of New York.

Yesterday as Ella and I were winding up our day in Manhattan I was sitting at the elevator entrance to the Fulton st subway while Ella used the bathroom at a restaurant before we headed home, while I waited I saw a very ill barely able to walk even with the cane he had man stumbling toward me crowds who had just ironically came from the freedom tower the very sight every soldier went to war for.
This guy was obviously homeless and everyone was giving him a wide berth thinking he was high or drunk or both, but I noticed the soldiers cross tattoo on his right forearm and I asked him if he was ok.
He mumbled a barely audible reply and I realised he wasn’t drunk, he obviously had a physical and possibly a mental disability. I offered him water and a seat next to me and we talked.
He hadn’t eaten in three days, he hadn’t slept indoors for a week, I asked about hostels and shelters? He explained he would get to the shelter front door by 4pm each day and line up and the manager would come out and give a number, for instance “we have 60 beds” and if your number was 61 tough shit.
He also told me even if you were placed there by a social worker you had to surrender your bed every morning by 6am and line up every day, no two days were guaranteed in a row? We were surrounded by fast food joints so we gave him $5.
As we talked I learned he had enlisted straight out of high school, he had seen action in the troubles in the former Yugoslavia, he had been to central America he had been to the first gulf war he had served his nation all over the world till one day his Humvee flipped.
He received a severe closed head injury and a broken hip and leg, they discharged him.
It took three years to get treatment, he was a highly qualified welder in the army so he worked on high rise construction but on good days he tolerated the head aches and the leg pain he stuck it out for a few years and then it was too much. The VA told him “it can’t be too bad you work” the medical insurance from the job said “sorry it’s preexisting” his family eventually said “it’s too much” the bank said “the house is mine” The VA said “too difficult” and this proud veteran who saw action on three continents wonders the financial district and sleeps under bridges.

The VA use the homeless to pad out their “we cured them” stats, when they become homeless they lose their military pension, they stop being able to afford to get to appointments so the’yre crossed off as cured?
He didn’t beg, he didn’t ask for a damn thing, and I tell you it was difficult to get him to accept it. Finally we left him with the address of an agency I know that will help, they can even house him and we gave him money for food and he got to sit down for 30 minutes and no one shooed him away.
Happy fucking Fourth of July huh?
86% of all our nations homeless are veterans more than
75% of that number live with severe PTSD and other injuries both mental and physical but the system is so broken while they wait for the VA to get their heads out of their asses and do their jobs the veterans lose everything but the first to go is their dignity and self-respect.

We did more for this veteran in 30 minutes than the entire federal system has done in a year, how many homeless have you rushed past quickly? Sometimes all they need is for someone to say “are you okay” and listen, who cares if they ramble be humane, be compassionate and just be there for the few minutes they need you.
Each year at Christmas Ella and I collect scarves and gloves and beanies and hats with ear flaps and socks and we give them away to the homeless as the snow sets in, try it the first smile makes it so worthwhile and remember these people swore an oath to even die for you if necessary should they be left to die alone under a bridge in a house made of boxes just because you don’t have the time?
EVERY SOLDIER SWEARS AN OATH TO LEAVE NO MAN BEHIND IN BATTLE LETS CARRY THAT OATH ON FOR THEM WHEN THEY GET HOME.


DEAR DONALD TRUMP WHEN DO YOU THINK YOU’RE RACIST HEAD WILL COME OUT OF YOUR ASS?

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For the last few weeks every time Donald trump sees six people at a bus stop he rants and raves like a southern boy at a klukluxklan rally about the bad brown people who come and steal and rape and murder, even though every corporation with the smallest remnant of a social conscious has dumped him and even Macey’s who would make money at a funeral if they could dumped him still he rants, still he sounds like a drunken redneck at an Alamo reunion and still he when asks scream “EVERYTHING I SAID IS TRUE”
Well Mr. Trump I’m an immigrant, but maybe you’d like me I’m white. But I think you’re an overblown over educated 10lbs of shit in a 5 lb. bag who if by any slight chance made it to 1600 Pennsylvania avenue would be a nail inof the coffin this great nation.

The next thing that occurred to me when I was out today was just how monstrously wrong you are, I was rolling along the south street sea port with Zeus the wonder pup and she who must be obeyed and a Hispanic family in front of me commented on how beautiful Zeus was we got talking the mother and father were born in Mexico trump he well he might have killed someone but it was during seventeen years of service in the united states army where he made it to army ranger, his son was there he was a marine who had so far done two tours in Iraq two in Afghanistan and was about to be sent back as a trainer for the Iraqi police force and army, remember now Donald they’re those Mexicans you were talking about.
But you might say that’s a fluke, well lets go back to march 2013 , the place Paris island marine training base.
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Where on average more than 45% of volunteer United States Marines yes they enlisted and graduated no easy task(google the crucible) were of Hispanic or central American ethnicity and another 20% were from more than 50 other countries.
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My nephew trump is a lance corporal in the marines currently on overseas deployment but you wouldn’t probably like him because this marine who has sworn an oath to defend ever American, yes even you asshole has a Russian mother and a Cuban father and Dominican stepfather and an Australian aunt yet the marines consider us a marine family
10376999_565353236915936_3125304297010245909_n My nephew is on the right.
There is a credo in the Marine corps about the people marines leave at home
THOSE WHO WAIT At HOME FOR THOSE WHO SERVE ALSO SERVE.
and btw there were was a third generation navajo indian in his unit whose grandpa was a code talkeryou know the guys who helped us beat the japanese?
So trump for every one marine from those proud nations you denigrate with your limp dick of a brain also has a momma and a poppa and siblings who at any tick of the clock could answer a door to an officer and a chaplain and the last thing they will ever hear about their son is the words
ON BEHALF OF A PROUD AND THANKFUL NATION as an officer hands them a triangle shaped flag

Next time you’re at the white house trump look to the left and then the right as you enter the front door chances are the marines in dress blues who are guarding it are those Mexicans you so despise?
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HAVE YOU EVER SERVED TRUMP? HAVE YOU EVER CARRIED A GUN INTO HARMS WAY IN DEFENCE OF YOUR NATION? HAVE YOUR CHILDREN? COULD YOU FIND A MILITARY BASE ON A MAP?
Ask the next middle aged Mexican you meet or Puerto Rican or Colombian or Bolivian or Haitian or Cuban chances are they’ve stood on the yellow feet but you wouldn’t know what they are?.
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To all those who are serving this proud nation and are from southern American or Central American countries we the people thankyou I’d say ignore trump but with his hair who can?


How do you get rich in America? You slaughter 9 people in a church and rednecks raise hundreds of thousands of dollars for you!

This week in America we the tribe who loves who we love, not who were told won the right to marry who we love EVERYWHERE. The affordable care act or as the republicants call it “that commie law the Kenyan forced on us” was finally ratified in the supreme court, after 67 challenges so whether the republicant’s like it or not the” poor folk can get doctored and fixed up”
The president led 5,000 people in a rousing verse amazing grace, and we saw glimpses of 2008 Obama, I am not a Christian but after his rousing sermon in mother Emmanuel church I would have reelected him.
Oh yeah and a brave chick climbed the flag pole to shred the stars and bars, and all over the south it’s finally coming down! Hey only 165 years after they lost.
P.S. they claim the civil war wasn’t about slavery? Really redneck I know expecting you to know how to read is a big ask but go to the confederate museum in Richmond and read the constitution of the confederacy, it states clearly to join the confederacy you must REPEAT must not only endorse slavery but make it law in your state!
So the stars and bars was the battle flag of a treasonous group who demanded you keep humans in chains and whip them when you want , rape them when you want, sell them when you want and murder them if you want!

So all round a pretty damn good week!(yes that’s sarcasm) except for that fact that the twisted little twink Dylan roof thought you ended bible study by slaughtering the class? And who could miss the perfunctory nra-republicant cry of “if they were fully armed they would have made it” yes folk’s 80 year old matrons always go to bible study packing perhaps the NRA needs to seel a bible with a holster attatched?
Really folks what fucking Kool-Aid have you been sharing? Republicants threatened to set themselves on fire if gay marriage passed(still waiting for that I have vegan smores all ready to go), then they said it was the 9 deads fault they died because they were not armed, and Idiot attorney generals have been telling their states the Scotus decision on gay marriage isn’t binding.

Welcome to the world we the disabled are forced to live in every day, the Americans with disabilities act has been red letter law for 25 years, yet restaurants still try to claim a “grandfathering” which is nonexistent in the ADA, 80% of sidewalks in Manhattan do not have down ramps at the corner and if they do they’re broken, I know a month ago I went head first cracked my skull and broke my finger in two places when my chair hit a sink hole.

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Now for the MTA, there are approximately 468 stops in the New York system and only 60 elevators exist at 30 stops and on any day the MTA themselves say approximately 35% are working.
So to round up this week-
If you shoot Christians you get rich

If you take down a flag of treason you get arrested

If you get the right to marry you’re going to hell

If you win the right to be well you’re a communist?

Did I leave anything out?.


NEWSFLASH SOUTHERN STATES OF AMERICA THE NORTH WON THE WAR IN 1865 AND SLAVERY WAS OUTLAWED. AND P.S SEGGREGATION IS GONE TOO!

What is with the southern states? When the Nazis were defeated they didn’t ask “excuse me I know we killed like 6 million people but can we still fly our flag?” The answer would have been HELL NO.
Yet what happened in the south? the south wanted to keep black people like pets and we said no, so we went to war and the north won yet to this day 148 years later Alabama south and north Carolina and several other states all fly the confederate flag. The flag of the traitors to the united states of America, the flag under which Americans slaughtered Americans, under which an American president was assassinated. Since that war tens of thousands of black people have been murdered, children blown up, churches burnt, black youth lynched dogs turned loose on peaceful protesters all because some redneck doesn’t want to share his lunch counter with a fellow human who happens to be black? BIG FUCKINGD EAL BILLY BOB GET OVER YOUR UNDEREDUCATED SELF!

Scientists have proved that there is ZERO difference in the DNA between Caucasian and people of color, In fact they have proven that all human life began as black in the African continent, so bubba and Billy bob when you plant a burning cross on the front lawn of a black family you’re doing it to your relative. You’re beating up on someone that you’re actually related to, you kept hundreds of thousands of your relatives in chains.
You are being blindly led by religious zealots who think further education is when you have to walk an extra block to school and college degree is something on a compass.

9 Innocent people were doing bible study in Charleston, now I have been to many Baptist bible studies and despite the normal word of god and praying for family they do something I think is weird, they also pray for every other people who hate them?.yes thats right they pray for people who wants them dead, who want segregation otherwise they pray for good things to happen to the very people who choose through generational ignorance to oppress them.
So chances are at the very moment that that psychotic punk decided to shoot they were probably praying for him and his kind.
Not until we burn every confederate flag and every swastika and outlaw them as the swastika was outlawed at the Nuremberg war trials, and actually enforce the law and purge all law enforcement agencies of anyone whatsoever with any white supremacist allegiances what so ever can we as a nation , a people have any chance of stopping the slaughter.
This mongrels family all say they knew he wanted to start a race war ,they all say they knew he wanted all black people dead BUT they also all cheered happy birthday when his father gave this phsyco a 45 caliber hand gun? What next kin folk were you going to help him build gas chambers?
This worship of guns has to be stopped, this worship of a long dead system of antebellum beliefs has to die like the very confederates who wrote its playbook.

THE SOUTH WILL NOT RISE, SLAVERY WILL NEVER BE AGAIN, THE CONFEDERATE FLAG IS NOTHING MORE THAN BRIGHT COLORED TOILET PAPER so get over yourself…


Stay up-to-date on ADA 25th Anniversary events taking place in the Washington, DC area in 2015 or find an ADA anniversary event being held near you:

June 8 – 10 — American Printing House for the Blind presents “Learning without Limits: A Celebration of Educational Opportunities for People with Vision Loss – Past, Present & Future” at the Rayburn House Office Building on Capitol Hill. A reception honoring Sen. John Yarmuth and Sen. Mitch McConnell will be held on the evening of June 9.
June 22 – The U.S. Department of Health & Human Services’ (HHS) Administration for Community Living will host a Joint Commemoration of the Olmstead Decision and the ADA at HHS Headquarters (Hubert Humphrey Building).
July 4 – The U.S. Department of State will commemorate the 25th anniversary of the ADA in conjunction with Independence Day celebrations at U.S. embassies and consulates throughout the world. Visit the Web page of the State Department’s Special Advisor for International Disability Rights to learn more.
June 8 – ADA 25: Lessons in Leadership and Legacy Conference, Constitution Center Auditorium – this free, day long workshop provides the opportunity for people with disabilities and disability advocacy organizations to participate in interactive discussions and training sessions.
July 16 – August 2 — John F. Kennedy Center for the Performing Arts & Smithsonian Institution 25/40 Celebration – the Kennedy Center and the Smithsonian are hosting a celebration of arts, culture and history this July to commemorate the 25th anniversary of the ADA and the 40th anniversary of VSA. Events will include art exhibits, musical and dance performances, a film festival and other exciting events —all free and open to everyone. Exhibits will include:
Focus Forward, Kennedy Center Hall of Nations: features work from previous VSA Emerging Young Artists Program winners
VSA Permanent Art Collection, Kennedy Center Terrace Gallery
ADA 25th Anniversary – Championing Disability Rights, Kennedy Center Family Theater Lower Lobby
VSA 40th Anniversary – Championing the Arts, Kennedy Center Hall of States
Photography – Disability Pride on Both Sides of the Camera, Kennedy Center Nations Gallery
July 16 — An Evening of Comedy with Josh Blue, ADA Celebration Opening Performance, The John F. Kennedy Center for the Performing Arts Millennium Stage
July 17 — A Night of VSA International Young Soloists, The John F. Kennedy Center for the Performing Arts Millennium Stage
July 20 — TiLT Challenge Screening & Dance Party, The John F. Kennedy Center for the Performing Arts
July 20 – August 14 — Americans with Disabilities Act, 1990-2015 Exhibition, National Museum of American History. Exhibit will include highlights from the history of accessible transportation from the U.S. Department of Transportation.
July 20 – 21 — Lex Frieden will host a meeting of disability experts at the U.S. Access Board headquarters.
July 21 — American Sign Language Storytellers Night, The John F. Kennedy Center for the Performing Arts Millennium Stage.
July 22 — American Association of People with Disabilities (AAPD) Justice for All Awards Ceremony & Rooftop Reception
July 22 — Let’s Read, Let’s Move Event with U.S. Secretary of Education Arne Duncan, The John F. Kennedy Center for Performing Arts
July 22 — Cabinet of Curiosities: How Disability Was Kept in a Box, National Museum of American History (learn more)
July 23 — The U.S. Equal Employment Opportunity Commission (EEOC) and the U.S. Access Board will host a joint celebration of the ADA anniversary and the enforcement efforts of both agencies. Location TBD.
July 23 — Michael Cleveland & Flamekeeper, The John F. Kennedy Center for the Performing Arts Millennium Stage
July 23 – 24 — National Council on Disability Quarterly Meeting, to be held at the U.S. Access Board headquarters. An ADA 25th anniversary reception will be held at the National Youth Transition Center, 2013 H Street NW, the evening of July 23.
July 24 — The U.S. Department of Education will host a ADA 25th Anniversary Celebration at the Department’s headquarters (400 Maryland Ave. SW).
July 24 — Conversation on Latinos & the ADA, National Museum of American History
July 24 – Blessings Offor, Rhythm and Blues Showcase, The John F. Kennedy Center for the Performing Arts Millennium Stage
July 24 – 26 — Smithsonian’s Festival ADA: 25 Years of Disability Civil Rights
July 25 – Disability Film Festival, National Museum of American History
July 25 — National Dance Day: Dance for Everybody, The John F. Kennedy Center for the Performing Arts Millennium Stage
July 26 — ADA25 Legacy Bus & Disability Rights Museum on Wheels arrives in Washington, DC, Madison Drive on Mall side of the National Museum of American History grounds
July 26 — Jean Kennedy Smith Series: Disability + Culture, The John F. Kennedy Center for the Performing Arts
July 26 – Celebration Concert, The John F. Kennedy Center for the Performing Arts
July 26 — “From Access to Belonging: An Interfaith Service Celebrating the Progress & Promise of the ADA,” First Trinity Lutheran Church (309 E Street NW)
July 27 — National Disability Leadership Alliance ADA Anniversary Gala: A Celebration of Pride, Power & Promise, Grand Hyatt DC
July 27 – 29 — Access Board Meeting
July 27 – 30 — National Council on Independent Living (NCIL) Annual Conference: “Generation ADA Rise Up.” Agenda includes a March, Rally & Capitol Hill Visits on July 28.
July 28 — Congressional Briefing on 21st Century Supplemental Security Income (SSI)/Social Security Disability Insurance (SSDI), organizers include the National Council on Disability, the U.S. Social Security Administration, National Council on Independent Living & CareerACCESS.
July 28 — Paralyzed Veterans of America (PVA) will host an event honoring former Senator Bob Dole with the Gordon Mansfield Congressional Leadership Award at PVA headquarters, 800 18th Street NW.
July 29 — The U.S. Federal Emergency Management Agency (FEMA) will hold an ADA 25th anniversary event with a keynote address and panel discussion at FEMA headquarters (500 C Street SW).
July 29 — Lennard J. Davis, author of “Enabling Acts: The Hidden History of How the Americans with Disabilities Act Gave the Largest U.S. Minority its Rights,” will hold a book signing at the National Archives.
July 31 — The US Business Leadership Network (USBLN) and U.S. Chamber of Commerce will host a Corporate Leadership Event (location TBD).
August 3 – 4 — VSA Intersections: Arts & Special Education, The John F. Kennedy Center for the Performing Arts
August 11 — The U.S. Department of Transportation’s Federal Aviation Administration will host a training in Washington, DC about civil rights obligations for airport operators. The training will include sessions on airport accessibility for people with disabilities. The FAA will also publish in the Federal Register an Advisory Circular addressing airport accessibility for people with disabilities.
In recognition of this important anniversary, the ADA Legacy Project is tracking ADA 25th Anniversary events in each state. Find ADA anniversary events throughout the country.


Oklahoma City Man With Cerebral Palsy Trains For MMA Fight

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Reposted from a story online BY DEANNE STEIN, NEWS

MIDWEST CITY, Oklahoma – An Oklahoma City man with cerebral palsy is training for the fight of his life. Not against his disability, but in spite of it.
Garrett Queen, 20, may have had a few punches knock him down in life, but don’t count him out just yet.

“He has never said I can’t do this because I have cerebral palsy,” said Pam Queen, Garrett’s mother. “He does not use that as a reason, he pretty much does whatever he puts him mind to.”

Coming from a family of wrestlers and mixed martial artists, his mind is set on becoming an MMA fighter. Through his trainer, Jeremy Jones, his dream is about to come true.

“I started working with him, doing this and that, trying to get his strength up, his mobility up,” said Jeremy. “He kept bugging me and bugging me about him wanting to fight and if I can get him a fight.”

Jeremy worked with Rage in the Cage owner Mike Crawford to get Garrett his first fight.

“I knew he worked with Big Brothers, Big Sisters for a long time and so I knew he would go for it. And he did,” Jones said.

Jones trains about a dozen other fighters for Rage in the Cage, a mixed martial arts competition where gladiators go one on one inside a cage.

“He pushes himself probably harder than half the people I train,” he said. “No doubt in my mind he’s going to be able to do this.”

Even Garrett doesn’t doubt his abilities.

“I am fired up and ready to bring home that belt,” said Garrett. “I’ve been waiting for this fight for a long time!”

And as for his dad, Randy Queen, he says he couldn’t be more proud.

“For him to get out and do something like this which I never thought he ever would, but he’s getting to do something to fulfill a dream that he’ll remember for a long time so I’m really happy for him,” said Randy.

Rage in the Cage 38, featuring Garrett Queen in a title bout will be held Saturday, June 27, 2015 at Choctaw Creek Park, 1900 Harper Street in Choctaw, Oklahoma. Doors open at 6:30 p.m. and the fight begins at 8 p.m. Tickets start at $30 and can be purchased at Charlie’s Bar in Choctaw, from any fighter on the card, Party Galaxy or at http://www.ticketstorm.com


Nevada GOP congressman: My kids ‘will not be a drain on society’ like disabled children

reposted from a story by DAVID EDWARDS
11 JUN 2015 AT 11:19 ET

Rep. Cresent Hardy (R-NV) said recently at a Libertarian Party event that he hoped his children would never be a “drain on society” like people who were disabled.

In audio published this week by the Nevada State Democratic Party, Hardy can be heard speaking to attendees at the Libertarian Political Expo in Las Vegas.

“I have three children,” Hardy explains. “One of them is summa cum laude and two were magna cum laude. The other one, he didn’t need an education. He works for Raytheon, smarter than all the rest. He works hard, he builds things that are genius. Some people have that ability.”

“But they all work hard. They are raising their own families,” he continued. “They will not be a drain on society, the best they can. Hopefully they will never have some disability that causes them to have to utilize that.”

Nevada State Democratic Party released a statement this week calling on Hardy to apologize to people with disabilities.

“If Cresent Hardy wants to talk about ‘drains on society,’ he should point a finger at his buddy, deadbeat rancher Cliven Bundy, not disabled children,” Nevada State Democratic Party spokesperson Zach Hudson insisted. “Hardy has compared employment non-discrimination laws to ‘segregation,’ agreed with Mitt Romney that 47% of the American people are ‘freeloaders,’ and now called children with disabilities ‘drains on society.’”

“Cresent Hardy’s comments are outrageous and he owes an immediate apology to every Nevadan with a disability


ADVOCATES FOR INTELLECTUALLY DISABLED CRY FOUL OVER REVAMPED POLICIES

Reposted from a story by ANDREW KITCHENMAN | JUNE 11, 2015
Critics, including legislators, assail rules for out-of-state residencies and group facilities, as well as switch from contracts to fees for services

Advocates for people with intellectual disabilities – as well as state legislators – say they are becoming increasingly frustrated with government officials who are being inflexible and uncommunicative regarding unpopular new policies.

One new policy is pushing for adults with disabilities who live in out-of-state facilities to move back to New Jersey, while another ends state support for large private facilities in what is billed as a way to integrate those with disabilities into the community. Also drawing fire is a new payment system for service providers.

The Department of Human Services says the changes enable the state plans to offer more and better services while lowering costs.

But legislators say families’ wishes aren’t being taken into account, and the state hasn’t been communicating effectively with families and care providers.

Senate President Stephen M. Sweeney (D-Cumberland, Gloucester, Salem) expressed disappointment that the state is requiring families to participate in the program, known as Return Home New Jersey, which is bringing disabled residents back into the state.

“No one can overrule a parent and government is actually overruling parents right now,” Sweeney said.

Deputy Human Services Commissioner Dawn Apgar said the state is working closely with families every day to show them that the state has improved its services since their disabled family members were moved out of the state, sometimes decades ago.

She gave several reasons why residents are being returned to the state, including that it allows the state to ensure that the residents are receiving appropriate services and that some out-of-state providers aren’t approved for Medicaid – the program that funds these services — in their own state.

Carolyn Reichenberg expressed concern that her brother, Richard Purcell, who’s lived at Woods Services in Langhorne, PA, for nearly 34 of the 49 years of his life, could be forced to move.

Reichenberg, a lawyer, said she can’t understand why the state hasn’t pursued pursued family funding that would offset the cost of the roughly 370 disabled residents who remain outside New Jersey. She said New Jersey is taking a “one-size-fits-all” approach rather than doing what is in each person’s best interest.

Apgar repeatedly asserted that no residents would return to New Jersey unless their families agree to the move. State officials have also said that residents won’t move unless there’s an in-state provider who can meet their needs and provide a safe environment.

Family members said they must attend a series of meeting with potential providers even when they know the providers won’t work out, for fear of losing state funding for their family member. Members of one family said they’ve attended 15 such meetings.

While Sweeney said he supports having all of the residents with disabilities return to New Jersey, it should be a result of the state developing services that attract families, not because they are being forced.

“We’re going to the finish line without running the race,” Sweeney said.

He said the state’s motives boiled down to money.

“It’s a budget issue, and that’s it,” Sweeney said. “It is not about the client, and that’s why this is wrong.”

Sen. Robert Gordon (D-Bergen and Passaic) said he anticipates the Senate taking action to try to reverse the state’s position on Return Home New Jersey, potentially by passing a resolution that would hold that the current regulations contradict state law. This could require state officials to rewrite the regulations.

Return Home New Jersey was only one of area covered during a Senate Legislative Oversight Committee Hearing yesterday.

Also addressed was the state plan governing housing for residents with intellectual disabilities, which requires that residents either have at least 50 percent of their activities take place outside of their residences or else have activities inside their residences that include people from the community. It also requires that they live in developments in which no more than 25 percent of residents have intellectual disabilities.

Apgar said the rules were in response to new federal regulations pertaining to people with intellectual disabilities.

The housing requirement is intended to increase housing options, Apgar added, since the bulk of current state funding is going to facilities where all residents have disabilities. Advocates say the plan could lead to service providers consolidating – but this is complicated by an absence of information about how quickly they will have to make the changes.

The state also is moving to pay Medicaid service providers a fee based on each service they provide, rather than the current system based on contracts. Apgar said the change will take place over an 18-month period beginning July 1. State officials have said the new system will allow for more individualized services with steady funding.

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FAMILIES OF DEVELOPMENTALLY DISABLED AGAIN FIGHT FORCED MOVES BACK TO NEW JERSEY

FOLLOWING CHRISTIE VETOES, FAMILIES OF INTELLECTUALLY DISABLED FEARFUL OF FUTURE
Thomas Baffuto, executive director of the Arc of New Jersey, said that the changes to housing rules and the payment system “will ultimately lead to a better system,” but that the rapidly shifting landscape – and the way state officials are communicating changes – are leaving providers uncertain of the impact.
Baffuto said it’s unclear whether the new payment system will provide enough funding to meet individuals’ needs.

“It’s very, very difficult for providers to make business decisions on how to move forward,” he said, adding that providers would like state officials to talk more with them about the changes.

Robert P. Stack, president and CEO of Princeton-based provide Community Options Inc., proposed that the state do a simulated “dry run” for a year with the new billing system, allowing providers and the state to better understand its effects.

Gail Levinson, executive director of the New Jersey Supportive Housing Association, said providers don’t know how the changes will affect them.

“Quite honestly, they’re afraid they’re going to go out of business,” she said.

Sen. Loretta Weinberg (D-Bergen) said it’s clear that communication is lacking.

She said of state officials: “Their version of reality of reality might not necessarily jibe with reality.”


Thank you for being a friend

G’day folks it’s amazing how communication though it has never been more available and more high tech sadly is a dying art, people walk side by side and text someone else while talking but not looking, and walking but not paying attention.
When you meet someone new you tell them about yourself, what you like, what you don’t and it’s the same for we the dis and otherwise abled, no it’s not the same it’s much more important , I as my regular readers now live with multiple disabilities spinal cord injury, arthritis, epilepsy, neuro spasticity, propio spinal myoclonus, PTSD, neuropathy and so much more.

Now if you knew Me prior to the litany of diagnosis that reads like greys anatomy you would know I am punctual, I am industrious, I am entrepreneurial creative and live by a credo “why do one thing with mediocrity when you can excel at 6 things simultaneously, as a child I was diagnosed as having the worst case off ADDHD the hospital had ever seen as well as being a language savant and an above average IQ and an eidetic memory.

Now we come to combining the pre diagnosis persona with the post and you get me! And that is a person who on her good days is ten minutes early, and is someone who listens intently, and with my memory will remember every word you say what you were wearing and what your looked like 25 years from now. But what you have to realize with a disabled person is with all the good intentions the non- disabled part of me laid out my clothes the night before researched the topic made cheat notes memorized them and went to bed early but then 4 epileptic seizures and 5 hours of limb spasms later you get a call cancelling not because I’m flaky or unreliable but because that is part of the deal when you have a friend with multiple disabilities.

The other night I was face timing with the amazing Annabelle planning an upcoming two day writing workshop for a radio project and literally half way through speaking my I-phone flew right ,my laptop flew left the service dog flew into action and I went into a grand mal seizure all while she watched me shake on face-time she who must be obeyed having seen this a thousand times caught the laptop with one hand the I-phone with the other while giving commands to the service- dog and telling Annabelle I would call back later.

The point of all this folks is whether you meet someone when they’re already disabled or you knew them before and was there through the change, there is a conversation and a pact that has to be made and it goes like this
“I WILL NEVER KNOWINGLY LET YOU DOWN OR BLOW YOU OFF AND OR JUST NOT SHOW UP WHEN YOU’RE RELYING ON ME”
“BUT THE OTHER BEING INSIDE ME THAT IS MY DISABILITY MAY HAVE SOMETHING TO SAY ABOUT ME KEEPING THAT VOW, IT WILL ARRIVE WITHOUT INVITATION ACT UP WITHOUT NOTICE, AND ALWAYS OUTSTAY IT’S WELCOME”
That being said being my friend is kind of like that old saying “love me love my dog”
In closing your part of the deal is to decide can you be in a friendship or business arrangement that despite the best made plans of mice and men will from time to time be put on hold and it’s no one’s fault?. If you can’t may the road always rise up to meet you and may the sun always be at your back and may you be in heaven a half hour before the devil knows your dead, it won’t be easy hanging in there but if you do the ride will be wonderful.


Michigan Teen Carries His Brother for 57 Miles on His Back for Cerebral Palsy Awareness

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Jun 8, 2015, 1:18 PM ET
Reposted from an online story By KAYLEE HECK via GOOD MORNING AMERICA

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Hunter Gandee, 15, walked 57 miles with his 8-year-old brother, Braden, on his back to raise awareness for Cerebral Palsy. Courtesy of Cerebral Palsy Swagg
Fifty-seven miles would be tough to walk, and even tougher with your brother on your back.

Hunter Gandee, 15, is sore and tired after carrying his 8-year-old brother, Braden, for 57 miles in Michigan to raise awareness for cerebral palsy, he told ABC News today.

Hunter’s trek began Friday and he finally crossed the finish line Sunday afternoon. He began walking from Braden’s elementary school in Lambertville, Michigan, and ended 57-miles later at the University of Michigan’s Pediatric Rehabilitation Center in Ann Arbor.

“I wanted to show people the struggles that Braden has to go through daily. I wanted to go out and show people we can make the world a better place for people with cerebral palsy,” he said.

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PHOTO: Hunter Gandee, 15, walked 57 miles with his 8-year-old brother, Braden, on his back to raise awareness for Cerebral Palsy.
This isn’t the first time Hunter has carried Braden around. He said he normally will carry Braden, who has the congenital disorder, into places like grocery stores, saying it’s more convenient than Braden’s walker. Last June, Hunter completed his first long trek.

“We had such a great success last summer when I carried Braden 40 miles that I wanted to try it again and make it even further,” he said.

Hunter and Braden had rest stops set up every 3 miles, where physical therapists would check on the duo and stretch out their tight muscles. Hunter said he rotated between three different harnesses that helped disperse Braden’s 60-pound body. While the harness helped with the physical discomfort, Hunter said the encouragement helped even more.
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Courtesy of Cerebral Palsy Swagg
PHOTO: Hunter Gandee, 15, walked 57 miles with his 8-year-old brother, Braden, on his back to raise awareness for Cerebral Palsy.
“If it weren’t for everyone cheering and walking with us, I wouldn’t have been able to do it,” he said. “I collapsed at the end of the second day because I was so tired. My legs were so sore but my friends picked me up and I made it through the third day.”

Hunter had no less than 15 people walking with him through the three days. Hunter credits his mom with coming up with the idea for Cerebral Palsy Swagger – the name of the walk – in March 2014.

“She had a dream that I was carrying Braden to raise awareness and that’s just what I did three months later,” the high school freshman said.
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Courtesy of Cerebral Palsy Swagg
PHOTO: Hunter Gandee, 15, walked 57 miles with his 8-year-old brother, Braden, on his back to raise awareness for Cerebral Palsy.
Since last year’s 40-mile walk, Hunter helped raise around $130,000 for a new playground at Douglas Road Elementary School – where Braden attends – that has ramps accessible to Braden’s walker and rubber flooring instead of mulch.

“There’s so much more to be done for people with cerebral palsy,” he said. “The walk was long and hard, but worth it.


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