Just because you use a wheelchair doesn’t mean you can’t stand!

Gday folks sorry it’s been a while,  life gets busy.

i thought I needed to post here to clear something up just because for medical reasons you need reasons you need a wheelchair doesn’t mean you can’t stand or walk!

i have a paralyzed left leg and loss of feeling in my right, can I stand? Yes can I hobble ? Yes but neuro spacticity means if I do for more than a few steps epileptic like spasms start.

Evidently I have a stalker someone contacted me calling me a fake today saying they saw me on two consecutive days one in my chair the next walking around my pickup?

to quote a learned man “ no shit Sherlock”

your mother must be proud you discovered that I like more than fifty percent of all chair users still have the limited ability to stand and walk.

it is idiots like this who abuse people with disabled parking stickers because “you don’t look sick”

please remember folks there are over 1,000 illnesses that require the use of a wheelchair less than 200 mean the user can’t stand or walk at all so next time before you abuse or video or use your vast never finished high school medical knowledge stop and breathe

This blog exists to edify perhaps before you assume next time ask ! Nicely of course

Kenguru hops into sunset with investors money

In  2013 in August I took to task a Texas lawyer who was bringing to America a supposed purpose built vehicle built to be driven by rolling into the back in a wheelchair.

It had been banned in Hungary for failing impact tests ,and having a top speed of only 28 mph deemed too slow to avoid danger and not fast enough to minimum speed limits.

Two other eastern block countries tested it and banned it,then it went radio silent for two years.

Then a disabled Texas lawyer called Stacey sought to circumvent all the bans by Marketing it as a “ moped” with a bubble around it???

When I made public it’s sordid past she lambasted me in not one but 17 angry replies within an hour of my story posting and in private message she threatened to sue???

“Me think thou lady doth protest too much”

So fast forward five years and a gentleman found the post and replied,it seems the liturges las from the lone star state organized a funding round . She then took the money promised the investors the emporers new clothes but left him naked at court! To quote Gomer Pyle usmc SURPRISE! SURPRISE!SURPRISE

Well little lady you better find a rock to hide under Texans don’t take too kindly to snake oil salesmen

Hey I know if you take the Kenguru add a slot for quarters maybe you can finally sell them as kiddy rides for shopping malls?

But as we say down under lady never bullshit a bullshitter I smelled your crap miles away

Or as my blessed grandma used to say

“ she’ll do a lot with a big stick and a basket of eggs!”

Mountain top Living

• well folks it’s been about a year since I last posted but it’s been a busy year.

since we last spoke our mountain top home has reached almost 1200sq ft and still grows.

its 100% accessible we run solar, wind, rainwater and grey water.

i have always been scepticle of people claiming that they have health products but I have started on a program with Isagenix it’s a multi level marketing program but this one is legit , it’s chemical free all products are chemical, artificial coloring,flavoring, and preservatives and GMO free.

so my weight is down my spirits are up I’m getting all the supplements I need sans side effects I’m traveling this wonderful country before trump destroys it so life is good anyway I’ll catch you soon

Not every medical problem is caused by the wheels under my ass!

Hi folks,remember me?

Yes I know it’s been a while but I have learned the hard way building a wheelchair accessible slice of off the grid heaven is actually a full time job.

well I’m back, and my reason is to talk about the words used to describe people who use wheelchairs and the assumptions people make about us.

A well meaning blogger recently wrote a piece titled “ living in a wheelchair for life”

last time I checked the wheels under my ass does not come with an ensuite and a galley kitchen?

perhaps the best way to describe wheelchairs and what they’re for is to quote the Supreme Court of the United States in 1996 when a wheelchair using woman sued a restaurant who denied her booking because they didn’t allow wheelchairs?

the unanimous decision of the court said

“ any perambulatory  device I.e. wheelchair, walker, cane, or anything else that may be prescribed to enable a person to live a normal life has the protection under law that an able bodied human does if you deny a wheelchair entrance you are for all intent and purpose telling that person we do not want you,your legs are a problem because the ADA established that wheelchairs and such devices are to the persons using them are their legs”

so my wheels, your wheels, your walker are nothing more than your legs, we’re not “ bound” last time I checked there’s no duct tape involved!

Im not sentenced to life without parole in my chair,I’m not in my chair for life I’m in my chair when I need to get somewhere just like an able bodied person puts on shoes to walk.

So now to assumptions! I went to a doctors appointment and she sent me to the physical therapy department to make a physical therapy appointment, the secretary looked at my wheelchair and said “ oh you mean occupational therapy” ? I asked why? She replied “ you’re in a wheelchair you must need occupational therapy?

I explained no I have an elbow injury I’ve been in my chair ten years

she replied “ we know best, our policy is the disabled always get occupational not physical therapy “ I had to get my doctor to come over to sort her out.

Listen  abelists,we can have a thousand other medical issues just like you that have zero to do with our wheels or walkers or crutches or prosthetics and don’t tell me because you can stand and walk you know best because you must be healthier than me.

The know all secretary was 200lbs over weight and had never exercised since Monica lewinski got friendly with the president

I rock climb,swim miles,built my own home and teach judo and race in my wheelchair yet a fat wheezing fast food munching ableist knows better than me what I need?

sounds like when men talk about reproductive rights doesn’t it girls

a very smart doctor who was my sons neurologist and mine once told a group of groveling interns that if you’re in a hospital room with a patient who lives with a life long diagnosis you’re not the expert they are!

He told the interns”listen to them,answer their queries ,talk to them, not at them or down to them theyre sitting in the chair theyre IQ isn’t remember the most intelligent living being on earth is Stephen Hawkins ?

Adelaide dress circle apartments “palm apartments” The worst accommodation in Australia !

The palms apartments (The dress circle apartments) seemed an answer to the prayers of this ex-pat Aussie who was planning a trip home To Adelaide south Australia, you can cook for yourself, wash your own clothes and its walking or in my case rolling distance from both Norwood parade and the Adelaide restaurant rich cbd.

The sales rep Mara was told I was in a wheelchair and we chose there “executive one-bedroom apartment with a city view balcony” we were told that in early September when we called yes it was still under construction but they were fully booked as of the 1st of October and no construction what so ever would be happening while we were there.

So, we prepaid in full over $1,000 Australian on the spot, fast forward we arrived on the 22^nd of November by their own words more than a month after construction and supposedly a month after they had been accepting guests so one would expect all would be smooth??one would think

Well the old saying is how do you make god laugh? You tell him your plans!

We rang the location as asked 30 minutes before arriving  and was told our “1-bedroom executive apartment with city view balcony” was ready, well as we pulled up in king William st Kent town it looked more like a building site than an upmarket accommodation there were no less than 5 tradies vehicles with the clear emblem of a construction company on their sides and at least a dozen steel capped, hard hatted workers with t-shirts with an emblem matching the trucks using power tools and carrying lumber.

An Indian gentleman greeted us and I asked him “are they still building?” to which he looked me in the eyes and bare faced lied as two builders walked behind him ”oh no, no building it was all finished a month ago” as the words left his mouth a carpenter got out of a pick- up with a builders name on the door wearing a shirt with the same builders name on it and he said to the Indian gentleman ”were the builders mate where can we park our Utes?”

So, we were told to drive around the back and pull into the underground carpark, the whole time the representative from the accommodation was denying emphatically that there was any construction as we pulled in there was timber, sheetrock and power tools everywhere with another 4 builders trucks and as a door opened the sound of a table saw filled the air and we saw a builder cutting 4by2 lumber?

Again, I asked the Indian gentleman and again he denied even surrounded by construction that there would be any construction noise and said they were all cleaners to which a tradie behind him muttered through his hands” bullshit”

So, we grabbed our luggage and went into the elevator to go to our 1-bedroom executive apartment with a city view balcony?? Or so we thought instead we entered a room looking like a hospital room with a balcony facing a grey masonry brick wall and a toilet which in the picture was straight out of better house and gardens looked like it was straight out of a hospital emergency room and if that wasn’t bad enough the bedroom had an 8x8ft clear glass window not in the outside wall  but in the bedroom wall yes the master bedroom had an 8ft sq. window from the loungeroom it reminded me of a mental hospital you might see in a movie and this one was 2 bedroom but one had 2 single beds ?an extra bedroom with 2 beds but he was telling us no one extra was allowed to stay or we would be charged 300 a night per person?

When we pointed out this was not the room we booked they replied “we know we decided to change your booking” they did this  without asking or consulting us but tried to pass it off as an upgrade!

We told them we wanted the room we booked and they told us this was all there was so we told them then you better find it and three separate executives from the company came in about every ten minutes all lying that there was no construction just that the other floors needed cleaning and when asked how the other guests had liked it in the month they had been opened we were suddenly told we were the first occupants and we would be the only occupants for most of our stay as they were not actually opened yet Mara referred to it as a “soft opening”

So, after 30 minutes of sitting in a cross between a hospital room and a bedroom with a window in it that looked like it was set up to shoot porn through it they took us up a floor to the room we should have had in the first place!

The construction noise was constant the apartment that we were assured was wheelchair accessible had a bathroom door that my wheelchair could not fit through so for the entire 8 days we had to put a kitchen chair inside the bathroom door and I would wheel up to the door and transfer then take my wheels off put the chair through the door put it back together

The first time we tried to cook the alarms went off we had the kitchen exhaust fan on  and the rooms exhaust fan on the balcony door open and yet the alarm went off and it went off constantly for 35 minutes,

Now consider this we were the only occupants  in the entire building and they knew I was in a wheelchair and their alarm was not connected to the fire brigade, and it was not obviously connected to their office because in almost 40 minutes no one called to see if the fire was real if it was the elevators would be not working so they would have had a disabled guest on a higher floor unable to use the stairs and they didn’t seem to care the recording attached to alarm was saying to evacuate and when we called the office we were told they were busy and would try to get there in about 15 minutes ?15 minutes later we called back and they were trying to come in 10 in 10 we called back and they told us if we were not happy we could leave?

The entire 8 days there was one problem after another and their only reply was “well leave” we were told during the fire alarm debacle by the man who finally came to simply take it off the wall every time we cooked so we did.

On our last day we came home to an aggressive almost threatening email saying the fire brigade had been in our room while we were out without our permission because a “system check” showed we’d “illegally” tampered with our fire alarm?

I told Mara on the phone we were told to by the maintenance worker to remove it when we cooked and she called me a liar told us we were whiners and they were going to black ban us from ever staying in any of their properties ever again?

Well Mara what you call whiners most would say

1/ people who simply request what they paid for

2/what they were promised would be ready was ready

3/ and not to be treated like an idiot by being bold faced lied to

On the last day there was a full-size construction crane blocking all and any access to front of the property now yes it was for next door but when the management was called they saw no problem that paying guests arriving to the front door were being blocked from coming anywhere on the block near the building? internet access  didn’t work and no two executives of the firm had the same access code and none of them worked which seeing as their business model is targeted greatly at business executives is a major down fall

the security door on the basement carpark which opened to a very dicey alley filled with old furniture and homeless people was broken and open from Saturday to Thursday meaning the vehicles were open to theft and vandalism and anyone could enter the building through the basement door.

the building was being so rushed to finish that there were paint splashes on carpets and tiles buckling from uneven grout and ovens and equipment not installed properly

when we told them we were having guests we were told there was a front door person on from 6am -6pm in the entire 8 days we were there there was only ever someone there for a total of two hours on a Monday.

 

G’day from the mountain top

When last we spoke folks this gimp dyke with wheels under her ass was in the battle of the nuts neighbor!

Well it seems the neighbor so cute he has the same last name as his first name has fucked off to the east coast for mating season , yes even he can get laid.

Below is our water collection and a lavender hedge I’m stRting in memory of my late dad who loved a good hedge

Well the house construction is booming , Ellas business is growing in leaps and bounds and we’re spending ten days in LA and I’m going to Disney land!

Not bad for a Sheila from the bush eh? Below is our cabin and the stick framing for our new bedroom and bathroom anyway it’s ooroo from the mountain top it’s about to monsoon 

A neighbor in the bush is worth two in the hand? No wait is that a bird?

Well the saga of the neighbor from hell continues.

We are constantly clearing brush to make way for new construction and while doing so today at bushes close enough to see in our house we found cowboy boot prints as if someone squatted for a while ( when you squat the print of the pad of the foot is deeper)

So I tracked them and they led back to his boundary, now he’s a couple of inches taller than me and a shoe size or two and these prints were bigger than my foot and I don’t own cowboy boots.

The scary thing is while tracking we found other prints made in the last few weeks to the same spot less than thirty feet from our cabin the picture was taken by me from my front door showing how close he’s been watching.

Well neighbor we will catch you and we will treat you like every peeping tom trespassing perv should be treated.

Good fences make good neighbors unless your neighbor is mine!

Last story I told you about the neighbor I have who has, I think obvious mental problems.

Says you you say! Well what do you call a neighbor who every night of the week around 3am rides his quad up our road and positions the headlights on high beam so as to light up our cabin like daylight?

Or finds rocks the size of footballs and lays them all over the road past his house so you can’t safely pass?

Or daily wonders around the area naked and if he sees you screams at you?

Well he has picked on the wrong girls, I a child of the Aussie bush who has basically raised herself since 14 and a Russian Jewish New Yorker who is first generation from parents and grand parents who survived the holocaust!

He can swing all the pathetic dicks he wants light us up as much as he wants we’re here we’re queer and we’re damn well going nowhere, light us up we’ll put a mirror to blind the fucker lay rocks on the road we’ll play hopscotch scream at us we’ll record the profanity and North Korean style blast you back with it at  all hours of the day.

But my loony toons friend if this keeps up our fence will be electric our driveway spiked and as many dogs as we can feed will Rome my bushland you love to walk through and trespass in.

We came here for peace and to get along to make enemies of no one but I have survived almost six decades by never losing a single fight ever! Whether verbal or hand to hand and my friend if you are to attempt a battle of the wits I suggest you make sure your weapon is loaded mine always is.

If he like us wants merely peace and tranquility I suggest a new more sane game plan we’re always ready to meet in the middle but only once the insanity subsides.

Anyway the sun is shining it’s in the mid 80’s and a beautiful day and he’s only pulled one stunt so far so it’s a good day so until next he walks on the wild side or I share our progress it’s ooroo from the mountain top

“I SAW YOU OUT OF YOUR CHAIR YOU ARE A FAKE!”

g’day folks yes its been  while but Ella and I have been building our mountain paradise.

We moved off the grid 7,500 ft above sea level to escape the craziness of new York only to encounter the only neighbor we have on the mountain top as crazy as a loon , if he sees you driving he is always naked he will swing his genitals round and round screaming “THERE YOU LIKE EM” or the other day I was driving down the mountain to pick up some builders working on our property and he was stark naked holding “himself ” in the middle of the track.

And now after putting up with the Pete school of how to be scary as a neighbor for two months  he posted on a community Facebook that he has seen me out of my chair so I must be a fake!!!!

well Mr “Pete”,  to Qoute Dr James Manson fellow of the royal college of neurosurgeons London queens specialist(that’s to her majesty not to anyone on the 7 train line in NYC) and head of neurology Adelaide Children’s hospital Adelaide

“there are over 1,000 medical conditions that will eventually require almost full time use of a wheelchair and less than 50 of those mean the patient cannot actually stand and in some cases walk”

My need for a chair has been described as two reasons

1/ juvenile spinal cord injury that was never treated properly and healed incorrectly and later in life caused ireperable damage to the nerves to the spine causing total loss of feeling and use of my left leg from the waist down.

2/ the nerve damage is now impinging on my right side and the doctor has said I will eventually lose feeling there as well but for the moment if I need to stand for mere seconds or transfer from my chair I can put weight on my right foot and can take one or two steps if I have a crutch or walking frame or lean on my wheelchair

3/ the last affliction is something my surgeon called neuro-spasticity which means if I do take those one or two steps more than likely I will experience an event similar to a grand Mal seizure

So crazy Pete the neighbor from hell has been hiding in the bushes ,yes naked on our land spying on us and he saw me out of my chair on my front porch remember he was trespassing sans clothes on my land hiding in the bushes spying on us and he thinks he busted me? when what he saw was me standing while my chair was lifted over an obstacle as i used the wall for support all in all 30 seconds max while he was breaking no less than a half a dozen laws in a stand your ground open carry state where if his naked ass was shot no charges would have been laid.

Remember folks not all disabilities are visible, some are degenerative and not all people who need wheelchairs are unable with assistance either human or medical aid to get out of that chair.

We’re disabled not dead

So before you loudmouth the person who pulls into the disabled space and walks away or you spy like an asshole on your neighbor and think you’ve solved the fraud of the century check your motives because chances are they’re not the one doing wrong you are!

Two girls go bush

Hi guys sorry it’s been a while it’s been a rough year,

We’ll when last we chatted I was telling you about the incompetence of NYC doctors ! You can change NYC for any city in the world when it comes to the care and respect of the dis- and otherwise abled just ask my mate Paul Caune in Canada or anyone of a dozen mates around the USA or back home in Australia.

Well we stopped complaining and did something about it, I’m sure over the last three years my loyal readers you were starting to think my off the grid mountaintop piece of heaven in New Mexico was all in my imagination but I assure you it’s real.

As of two weeks ago this transposed transgender Aussie dyke with wheels under her ass and my loyal sidekick Zeus the wonder dog threw everything we own and she who must be obeyed in our little red truck( also our cb handle) and took the road trip of a life to our mountain top and here’ll we’ll stay.

From today on disabled access denied is being re dedicated to showing the day by day operation of our mountain top , how it was designed completely wheelchair accessible how I with wheels under my ass with a little help from my beloved raise vegetables and horses and animals all as pets in our piece of heaven.

If I can do it, realize my dreams that is you can to.