“Close enough is good enough”

On November 23rd I was sitting home at about 10pm and suddenly without notice had a Tia A”transient aschemic attack” or a mini stroke, the difference between a TIA and an actual stroke is that the offending blood clot with a TIA breaks up just before it gets close enough to the brain to do permamnent damage and cause a brain bleed,

The effects albeit temporary are the same,

drooping facial muscles

slurring of the speech

weakness of the muscles on one side of the body

with a stroke they can be permanant, with a TIA they normally disappear leaving only intense exhaustion within 72 hours.

I was in Hospital for 5 days at flushing general hospital, A word of warning, if you get shot stabbed and run over in front of flushing general crawl somewhere else. They had the bedside manner of Osama Bin laden at a Jewish high holy day and the combined intelligence of a fart in a bottle!

Don’t believe me? a Tibetan surgical resident Dr tenzin said the TIA was caused by and I qoute” your sedimentary lifestyle because everyone knows once your disabled and in a wheelchair your physical life is over and you can’t exercise or do any sport you just sit and do nothing”

The wanker above had obviously never heard of the Paralympics or  Christiian Otter bailey or Wheelz Fotheringham and when I tried to point out that I rock climb, swim, road race teach judo from a wheelchair and run my own off the grid  farmland he called for physc eval because in his words i had “delusions of normality”

I also live with irritable bowel syndrome and have to live strictly on a vegan version of the FODMAP diet, now in 5 days 15 meals 4 dietitians three doctors and two nursing directors they could not organize a single meal that was not dangerous for me to consume?

So finally I was out and home, then came the barrage of specialists , neurologists, cardioligists eeg’s ekg’s stress tests, cardiac doplers, ct scans so Ella got busy organizing appointments.

Now what I’m about to say is not racist becuase it concerns a Russian doctor and Ella is Russian, but when we went to a Russian neurologist and when they went to take my blood pressure instead of having the kind of machine doctors normally have they had a $29.99 walgreens special home unit and TIA’s being caused by hyper tension which is high blood pressure I inquired “is that machine calibrated the reply was “aaah close enough is good enough”

Then not knowing we spoke and understood Russian the the nurse the pa and the neuro stood in front of us and started to talk insultingly about us in Russian .

When we made the appointment we asked are they wheelchair accessible? and they said they were. When we got there The  doors were not wide enough, they had to remove an entire sofa from the waiting room and they knew we had a service dog and yet when they saw him they said to each other in Russian the dog had to go?

We  started to realise with one cancelled appointment after another if it seems to good it probably is. Most secretaries have never heard of the ADA and have no idea what accessible means, and if your doctor was educated in the medical school of Grenada or Guatamala and theyre not Grenadian or Guatamalan there is probably a good reason why they didn’t get into an American medical school and a greater reason why you shouldn’t go to that doctor.

Here’s some tips for what to avoid in a doctor when making appointments

1/ If the secretary cannot speak English or sounds like she thinks conjugating a verb is a form of birth control and you’re calling an expensive specialist not an internist in a ethnic community

2/If when you ask if their ADA compliant or accessible and they have to ask what the big words mean

3/If the country they went to medical school in doesn’t have a us consul or is on a tourist warning list

If you ignore all of the above and you show up

1/If the staffs attire is more at home in a strip club (the neurologist was wearing a mini skirt fishnets and thigh high boots)

2/The staff shove you in a back lunch room and staff keep walking in and out and boxes of supplies are stacked all over the room because it’s their”accessible room”

3/ The ADA compliant entrance to their building is the garbage dumpster cherry picker in truck loading bay in the basement

Then to quote the movies “run forrest run” because even in 2017 New York City this is what passes for competent ADA compliant medical care sadly.

Author: disabledaccessdenied

I am a disabled woman who through no fault of my own has wheels under my ass. I rely on the decency and common sense of local, state and federal goverments, as well as the retail community to abide by the disabled access laws and provide adequate ramps, disabled toilets, and not use them as store rooms or broom closets. This blog exists to find the offenders and out them, inform them, and report them if necessary and shame them into doing the right thing when all else fails.

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