Mia you’re always complaining just accept what you have and be happy!

My friends know I do advocacy work for the dis and otherwise abled community, they knew it when they friended me, yet lately people have unfriended me because “I’m always fighting a battle” well look up advocacy and it will tell you “one who fights for those who cannot?
Honestly these people are as bad as those who meet a guy with a alcohol problem who screws around and think that magically the moment he says “I do” they can change him.
If you friend someone with wheels under their ass expect a lot of posts about the disabled, if you friend someone gay expect to read posts relevant to gay rights and if they’re both…well you get the idea.
Yes were lucky to be alive, those of us who ended up in a chair from an accident or horrible event for the most part have the worst days of their lives behind them It just takes a while to realize that, sometimes even those who seemingly have it together have bad days Ella calls mine Mia days.
So to the uneducated imagine your busy lifestyle getting up at 5 am getting ready for work getting the kids ready for school then a couple hours on public transport or in traffic then anywhere from 8-12 hours at work then the trip home then house work kids dinner laundry all the stuff other wise known as life. So now either
number 1 -Imagine that but before all that you help you’re wheelchair using partner get up shower get dressed get in their chair take medication and then the rest of your day begins, then when you come home you have the family screaming and you have a person who relies on you for everything in some cases even wiping their ass or changing a colostomy bag or adult diaper and ask yourself could you do it? And before you say ”what about home care?” this is America home of the free.. free to be broke and over charged and under serviced the average version of home care is the wife husband or another family member.
Now number- 2 You wake up get into your chair get yourself ready, get your family ready go to work run a house all from a wheelchair, and on regular basis have your benefits cut because someone thinks paraplegia is a temporary booboo or you lose your job because you only get two sick days a year and you’ve had three surgeries and two sleep studies this year. ?
Could you handle it? hope you never find out that’s where advocacy comes in. Sometimes the only way that person gets home help is if we name and shame the people saying no in the press. Sometimes the only way that airline doesn’t get to throw the service dog off or make the disabled person crawl to their seat is when their picture and name goes viral.
So yes I make no apologies for regularly storming the bastille on my social media pages or in the posts of this blog. While we have a congress of good ol boys whose version of social welfare is going back to the jim crowe days, or believe that “slaves had it good” or that women who are raped should have the baby or that their body has a magical device so they can’t get pregnant when their raped or that the world was made in seven days and is 6,000 years old someone has to stand on the outside of the zoo making sure their mental poison doesn’t make life for the disabled or that matter any of us any harder than it already is.
It’s not just me there are a network of us allover the world ,paul caune in british Colombia never stops the fight, and then there are the real heroes, those parents who just fight like hell for their children or the spouses who give up everything for the one they love.
So before you dump someone next time or tell them they need to chill look around you, you might need a friend who never gives up no matter what and you may have just unfriended that very person. So instead of saying “dial it down” why not stop and sit a while and find out what the ruckus is actually about ,who knows it may effect you and the ones you love.

Author: disabledaccessdenied

I am a disabled woman who through no fault of my own has wheels under my ass. I rely on the decency and common sense of local, state and federal goverments, as well as the retail community to abide by the disabled access laws and provide adequate ramps, disabled toilets, and not use them as store rooms or broom closets. This blog exists to find the offenders and out them, inform them, and report them if necessary and shame them into doing the right thing when all else fails.

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