In the last 48 hours I have been interviewed by CNN, the London daily mirror and had the CNN interviewed aired on several NBC affiliates.These interviews were published online and as with most online publications they opened the article up to comment! Well the experts came out of the wood work, I was accused of being a fake, lying about my clothes size, lying about how I put on the weight, about how I lost the weight, whether I can climb, whether I can swim, I was called obnoxious, a slob, angry, sad, emotional, retarded and they were just the ones the moderators didn’t ban.
The one thing they all had in common, they were not me,they didn’t roll a mile in my chair, they were for the most part over weight over opinionated wannabe’s hiding behind a fake screen name (one guy expected to be taken seriously with the moniker “the almighty Satan” and he called me crazy!) You see it long ago became apparent to me as Winston Churchill once said it’s not until you have upset someone and made enemies that you know your doing your job right.
Every day here in the united states and in England ,Europe Australia and the rest of the world there are more rights walked on than side walks. Those include the rights of the gay community to love whom they want and marry, the rights of the disabled to live independently and receive equal treatment, the rights of the people of color to be treated without prejudice and the rights of girls in Muslim countries to be educated without fear of death, the rights of women to receive equal pay for equal work with a man and the right of a woman to not be a punching bag because someone else thinks they own them and the rights of a child to go to bed without fear that their monster isn’t under the bed it will climb into it and do unspeakable things to them forever stealing their innocence.
All of these things every minute of every day are being walked on and ripped away soul by soul. When I first got into advocacy work I met Christine Quinn, the speaker of the New York city council and someone in her office called me a pain in the ass after I doggedly kept on them to repair the sidewalks in Chelsea and my reply to that was “yes I am a professional pain in the ass the biggest you will ever meet until the rights of newyorks dis and otherwise abled are no longer used as door mats and toilet paper by this establishment. I often sign off my articles with RESPECT OUR EXISTENCE OR EXPECT MY RESISTANCE because as former Australian senator don chipp said ”SOMEONE HAS TO KEEP THE BASTARDS HONEST!”
When these people replying to these articles became offended at my replies, what was their real problem? They had an opinion in their mind that they were right, they had never met me and they were not disabled for the most part and they didn’t live in new york or they were not sure if I wore size 16 but if I did I was successful and they can’t accept that it means their opinion was wrong. If I didn’t “woddle off to the fridge and pig out” if I actually did gain the weight because of steroid based drugs and immobility as was the case then the people who think all fat people are slovenly lazy slobs who eat anything and everything have to face the fact they judged me incorrectly, and to the homophobes who insisted “i was a dude and a freak” well they will never change.
You see the problem with the internet is bigots can hide, monsters can be friends and mechanics and garboligists can claim PhD’s and once they begin their diatribe others believe they must be right so even though I am writing about my life that I lived about my disability that I live with someone who has never met me suddenly is deemed to know more than I the person who actually holds the facts.
As long as we have this anonymous forum we will have anonymous bully’s, we will have the people who know somebody who met somebody who sat next to somebody on a bus who had a cousin who read a book on the subject, so the cyber vox populi votes them immediately to head of their little plebeian council and gives them unfettered right to abuse lambast and decry good people who simply told their truthful story in the hope it helped others.
I am not whining, far from it while I say thank you to people who did wish me well or congratulate even they of the minority of well wishers matter not to me. I can’t let them you see, I have never met them they are not here when Ella needs help picking me up after a seizure they don’t massage away the limb spasms when they hurt so much the pain brings tears to my eyes they didn’t hold us when momma died so if your not in our every day life you don’t get a say and when you do have one I cannot let it impact me or our life it would not be right by the band of brothers and beautiful sisters who are there for the good the bad the life and the death. They always have been and always will, and they don’t ask a thing for it they just care.
So yes I am all the names you call me if you like, because you’re opinion and $2.50 will get me on the subway and that’s about all it matters. To those who need my help I am always here, to those like minded individuals who care for their community and put it first you only have to call an I will help but to those who will read this and think up their version of a witty insulting comment don’t waste your breath you see you are the reason the trash bin on my blog was invented and it never gets full there’s always room for one more. If you want to tear me a new one by replying, well if your point is valid and expressed intelligently then it will be published if not please read above.
A friend of mine when he first read my blog told me if I was going to publish a pity party at least get it catered so none of this is pity, if you think you have caused me to pity myself you give yourself way too much importance. This blog was born out of the belief that if I experience bigotry abuse and oppression of my rights how dare I let my ego get so big as to believe in this whole wide world I am the only one that it happened to today, and to that end when I research, write, fight, protest, and storm the Bastille of the corporate and government worlds I am the last one I do it for because as the Buddhist teachings tell us in mantra “this energy I take in is so I may work so that all others benefit from my effort first” to my friends namaste to all others may you live in interesting times