Young girl who took on organ donor rules getting lung transplant in Philadelphia

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Last week this blog did a story about this girl and how the rules barred her from being on the transplant list, because she was a child. Every adult on the list in the country would have to be offerred the lung before she was even considered. Well yesterday the courts intervened and we are happy to say she gets her transplant today see the story below.

Reposted from a story online at abc7 Updated at 11:39 AM today

PHILADELPHIA — A 10-year-old girl whose efforts to qualify for an organ donation drew public debate over how donated lungs are allocated was getting a transplant Wednesday, her family said.

Sarah Murnaghan, who suffers from severe cystic fibrosis, was receiving the transplant Wednesday at Children’s Hospital of Philadelphia, a family spokeswoman said.

Her health was deteriorating when a federal judge intervened on June 5, giving her a chance at the much larger list of organs from adult donors.

The case could bring change for other children, as another cystic fibrosis patient at the same hospital has also gone to court to be added to the adult donor list. The Organ Procurement and Transplantation Network says 31 children under age 11 are on the waiting list for a lung transplant.

Murnaghan’s mother, Janet, said in a Facebook post that the family was “overwhelmed with emotions” and thanked all her supporters.

“Today is the start of Sarah’s new beginning and new life!” she wrote.

Last week, federal Judge Michael Baylson in Philadelphia ruled that Murnaghan of Newtown Square, Pa., and 11-year-old Javier Acosta of New York City should be eligible for adult lungs.

Their families challenged existing transplant policy that made children under 12 wait for pediatric lungs to become available or be offered lungs donated by adults after adolescents and adults on the waiting list had been considered. They said pediatric lungs are rarely donated.

It was not immediately clear where Murnaghan’s donation came from.

Critics warn there could be a downside to having judges intervene in the organ transplant system’s established procedures. Lung transplants are difficult procedures and some say child patients tend to have more trouble with them than adults

Author: disabledaccessdenied

I am a disabled woman who through no fault of my own has wheels under my ass. I rely on the decency and common sense of local, state and federal goverments, as well as the retail community to abide by the disabled access laws and provide adequate ramps, disabled toilets, and not use them as store rooms or broom closets. This blog exists to find the offenders and out them, inform them, and report them if necessary and shame them into doing the right thing when all else fails.

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