The DSM is the official medical dictionary of mental illness, like most things in the medical world it can take decades for any change good or bad to happen. It took decades for aspergers to be included as a diagnosis and even longer for the medical community to take it seriously, it’s only in the last twenty years mental health experts decided to specialize in aspergers as a separate diagnosis to autism.
My beautiful son has grown up living with aspergers so this weeks decision to deregister aspergers as a diagnosis separate to autism is personal and has the possibility to set back treatment many years. When a diagnosis is accepted and taken seriously by the medical community research funding is made available and because of that advances in treatment are made.
It is my feeling that now it is lumped back in with the rest of the autism spectrum funding will be reduced from plentiful to sharing the already small pie that has to be divided already too many ways amongst the large spectrum that is autism. This action by the powers that be who decide what’s in and out doesn’t just cut funding and therefore quality of treatment for those with Aspergers, but all with autism because of the fact they have to now share their money with one more group of patients .
Can the medical community please stop hurting those already hurt? can we not go around telling families the illness their child and therefore they also live with no longer matters. The DSM may have decided on a Monday it’s no longer an illness ,but come Tuesday there were still millions of families struggling with it.