The Mistreatment Of the Wheelchair Bound By Hospitals And Institutions Is World Wide

 Recently, Because simply of the fact I’m disabled and epileptic hospital, tests, Haemotology and Internist and specialist visits have been more a part of my life than socializiing good food and hangig out with close frieds. , Sadly When you have wheels under your ass shake a little too much or like my friend Kim rely on a  wonderful Canine friend to live life this is far too common,  but sometimes it’s just disabled life. Recently after three bad Hospital stays in a row, On two continents  I posted a series of pieces on my blog shining a light on the institutionalised Ineptness and stupidity that is,sadly passed off in this country and others aparently as Quality medical care of the disabled . When I speak I try to show my life and then I research others similar who may have the same problem thinking that maybe by highlighting my problem in my blog or one of my novels others may realise they are not the only one, it didn’t just happen to them and have a weight lifted. By following the formula previously mentioned when I write maybe, through our mutual experiences, discover a solution to the problems at hand. One such situation is highlighted below, where I have cut and pasted the original story and a exchange with one of my readers, a blind Canadian woman who is also a paraplegic with like me other diagnosis thrown in just to further complicate matters. When you read the replies from kim you will see my admonishmet for a assumption on my part ,but seriously this was one time I was thankfull for the chastising because the story Of kim and duke is one that must have a even bigger light shone on it to try and get the message out that this instutionalised stupidity must stopped we are humans not steaks to be put on a shelf to age, or Guinea pigs to try your latest technique.  In closing we are NOT the guest of honour at anyones pity party lead us follow us or get the hell out of our way!

Kim herself Authors a great blog, her details are attached to her replys below.

The treatment Of The Disabled in Public Hospitals

I have a severe form of Epilepsy as part of my disabilities and even though I’m on high levels of anti convulsant medication I’m still having daily seizures,so tomorrow I am being Admitted to Beth Israel Hospital in New York city for exstensive neurological testing.

Like most life long Epileptics i have spent thousands of hours during my life in hospitals and neuro labs The trouble is since taking control of my own care as a adult some 30 years ago I, have never really found a totally competent hospital.

If I am Jewish  or Islamic ,or blind , or I Eat kosher or Halal every Hospital bends over backwards to serve All my special needs and so they  should, dignity should be respected  whether religous or because of medical conditions , Then you get to the wheelchair bound  and it has been my experience your put into the bed, your chair has been pushed into the corner out of your reach and there you sit like a lump on a stump  hoping a wayward nurse might get lost and wonder in from time to time .

Well I have hopes for Beth israel, but never too high They obviously haven’t read my blog let alone the tone of my criticisms because they are letting me bring my smart phone and laptop.   If Beth Israel is the exception I shall scream it from the top of my key board and if they are the same as my previous experience I shall name them and flame them  so stay tuned to these pages and I’ll let you know .

 

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This entry was posted in Hospitals by disabledaccessdenied. .

4 thoughts on “The treatment Of The Disabled in Public Hospitals”

  1. When you included blind in your examples of situations where hospitals bend over backwards to serve all of a person’s special needs all I could think was “if they only knew?!”

    I’ve been blind and had CP since birth then in 2004 became a quadriplegic after a spinal cord injury. I’ve been in a rehab centre for over 120 days because of muscle spasms that are uncontrollable. I have safely gotten around for the past 7 yrs with a wheelchair and guide/service dogs, but since I’ve been here, although it’s safe and I have proven I am capable by surviving the past 7 yrs I am not allowed to have my guide/service dog here to work and not allowed to use any wheelchair outside of my room. In fact I am not allowed in my own because it tips over (it’s lightweight and not set up to handle the spasms), I am not allowed to bring in a wheelchair that is safe and the only option I am given is to use one of the rehab’s wheelchairs that doesn’t fit properly, and that I am unable to move on my own. The only way I am allowed to leave the room is if someone pushes me.

    All of the other patients are given a wheelchair as soon as they come in and are allowed to move around freely as soon as they sit in it with absolutely no “training”, yet I have more experience than every other patient combined and I am forced to stay in bed or sit next to my bed unable to move or reach anything while illegally being separated from my guide/service dog for over 120 days with absolutely no therapies because the OT doesn’t know anything about guide or service dogs, blindness or adding any type of wheelchair to the situation and “doesn’t have the expertise” to allow me to do something I have done for the past 7 yrs. I am not allowed to show her or anyone else what I am able to do so the decision can be based on fact instead of her discriminatory ignorant opinion and instead it is automatically considered “too dangerous” because of her lack of understanding. If someone “doesn’t have the expertise” to know if something is dangerous or not, how can they say it is dangerous?!

    • Dear writer thankyou for your honest and heart felt reply,finally I am getting people yelling back at the universe on my page I ask your permission to reprint your story as part of an article to show the world that the hospital system is not waving it’s drowning in it’s own ineptness If you could let me know what part of the world so I could write with the seriousness and acuracy you deserve and once again thankyou for your story I eagerly await your reply.

      • Your welcome (sorry it turned into a bit of a rant…) and thank you for putting all of the time and effort into this blog! You do have permission to reprint my comment (my blog has more information if you would like to know more. It’s the link I used when writing the comment.) Feel free to use any of the information from there also.

        I am in Canada, and I would like to stress that the whole Canadian healthcare system isn’t this horrible. After my SCI I was living in another province and the healthcare I received there (although there were a few hic-ups along the way like everywhere else) was so much further ahead of what I am getting here in Newfoundland. In fact, when I was in Nova Scotia, they worked with me to work with my guide dog and the wheelchair I needed even though they didn’t do it before. They didn’t hesitate to jump right in an adapt things as needed.

         

         

  2. Never apologise for ranting, ranting by me took one angry dyke with wheels under her ass screaming at the universe via the internet, to a voice now read by over 17,000 readers and a network of help that includes the attorney general. I know social medecine is good I was born in Australia I have had a quick look at your blog and it looks great, I will be writing this afternoon, today is visit poppa day so off I roll with the love of my life .please stay in touch and for gods sake keep ranting Then I won’t feel like the solo in front of the Choir

  3. Footnote  on kim’s Story

  4. Miller Centre patient denied seeing-eye dog

    Kimberley Robbins, 29, of Caplin Cove, Conception Bay who resides in Torbay, is shown in her hospital room at the Miller Centre Wednesday. On her laptop is a photo of Duke, her two-year-old Siberian Husky guide dog who isn’t permitted to be with her according to Eastern Health policy. — Photo by Joe Gibbons/The Telegram Kimberley Robbins, 29, of Caplin Cove, Conception Bay who resides in Torbay, is shown in her hospital room at the Miller Centre Wednesday. On her laptop is a photo of Duke, her two-year-old Siberian Husky guide dog who isn’t permitted to be with her…

    Pictured on Kimberley Robbins’ laptop computer is her Siberian husky, Duke, a handsome dog, for certain.

    Robbins has not seen him in more than 100 days since entering the Dr. Leonard A. Miller Centre in St. John’s, where the 29-year-old is being treated for muscle spasms that have become progressively worse over the last seven years — they cause her to fall out of her wheelchair at times.

    But Duke is not just a dog she values as a companion — he’s her seeing-eye dog.

    Robbins, who was born blind, developed transverse myelitis in 2004.

    The neurological disorder caused by an inflammatory process affecting the spinal cord has forced her to use a manual wheelchair in tandem with her guide dog ever since.

    An accident in the bathroom this year sent Robbins to the Health Sciences Centre. She was eventually transferred to the Miller Centre for physiotherapy and to try new drug treatments.

    Upon being transferred to the Miller Centre, Robbins assumed she would be reunited with Duke.

    “When I came here, I gave them a week, and then once I was able to get up and stay out of bed long enough, I asked if he could come here, because he’s supposed to be able to.”

    Eventually, Robbins said, she was told it is against Eastern Health’s policy to allow guide dogs to stay at their facilities.

    Robbins claims to have since learned there is no policy and said she was told a policy is being worked on.

    In addition, Robbins said she has been denied access to a power wheelchair, even though an occupational therapist and sitting specialist both suggested it would be her best option.

    “They both agreed that’s what I needed to move on.”

    The occupational therapist later expressed concerns about using a power wheelchair alongside a guide dog, according to Robbins, and has kept her from trying it out since then.

    She has a manual wheelchair in her room, but said she cannot use it at the moment.

    “I can’t even sit in it without tipping over because of spasms.”

    Robbins said she has used a power wheelchair in the past, and had no issues.

    As a result, Robbins has spent her time at the Miller Centre confined to her bed. She expects to stay at the rehabilitation centre for at least three more months as she considers the possibility of undergoing a surgical procedure in British Columbia or Alberta to treat her spasms.  While it has been a frustrating experience for the Caplin Cove native, she did receive a call from an official with Eastern Health shortly before she spoke to The Telegram Wednesday informing her that the regional health authority is looking into her concerns.

    “That’s really good,” she said.

    Although Duke is allowed to visit Robbins at the centre, she said it would stress him out too much to see her in her present state.

    “He’s usually really hyper and active, and ever since I’ve been in the hospital he’s been at my mom’s laying on the couch. He won’t go for walks, and she’s got to pull him off the couch to go eat or go outside.”

    A spokeswoman for Eastern Health confirmed its does not have a formal policy in place for guide dogs. She went on to point out it does have guidelines in place for its pet therapy program. For that program, the patient is responsible for looking after its animal, and the animal cannot be a threat or nuisance to other patients or staff.

2 thoughts on “The Mistreatment Of the Wheelchair Bound By Hospitals And Institutions Is World Wide

  1. Thank you so much for taking the time to write this entry! I really appreciate it it. I would just like to clear up two things though in case other people reading it has any “concerns” like happened on the news story.

    Even though I am technically a Quadriplegic (C6 complete) I do have some arm movement (like most quads do).

    Also, the comment I made about my guide/service dog being “usually really hyper and active” was taken out of context as the news story was written. I was trying to explain how Duke spends his time laying on my mom’s couch, and spending his time laying across the door to the room we use to stay in whining and crying if my laundry isn’t washed as soon as it’s brought into the house and he smells me off of it, or after hearing me on the phone. My point was this is so unlike him. He usually has all of the energy he needs to work and then some. Even though he is always on his best behavior when working, he still has a spring in his step and I know that he has the energy and drive to do whatever he needs to and the energy to play when he is given the opportunity.

    • Thankyou for the reply, Every time your dog does this get your family to video it send me the link I’ll start putting it up on you tube lets shame them name them and flame them if the youtube can do horrendous things like make Justin Beiber Famous it’s time it Gave back lol

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