Recently, Because simply of the fact I’m disabled and epileptic hospital, tests, Haemotology and Internist and specialist visits have been more a part of my life than socializiing good food and hangig out with close frieds. , Sadly When you have wheels under your ass shake a little too much or like my friend Kim rely on a wonderful Canine friend to live life this is far too common, but sometimes it’s just disabled life. Recently after three bad Hospital stays in a row, On two continents I posted a series of pieces on my blog shining a light on the institutionalised Ineptness and stupidity that is,sadly passed off in this country and others aparently as Quality medical care of the disabled . When I speak I try to show my life and then I research others similar who may have the same problem thinking that maybe by highlighting my problem in my blog or one of my novels others may realise they are not the only one, it didn’t just happen to them and have a weight lifted. By following the formula previously mentioned when I write maybe, through our mutual experiences, discover a solution to the problems at hand. One such situation is highlighted below, where I have cut and pasted the original story and a exchange with one of my readers, a blind Canadian woman who is also a paraplegic with like me other diagnosis thrown in just to further complicate matters. When you read the replies from kim you will see my admonishmet for a assumption on my part ,but seriously this was one time I was thankfull for the chastising because the story Of kim and duke is one that must have a even bigger light shone on it to try and get the message out that this instutionalised stupidity must stopped we are humans not steaks to be put on a shelf to age, or Guinea pigs to try your latest technique. In closing we are NOT the guest of honour at anyones pity party lead us follow us or get the hell out of our way!
Kim herself Authors a great blog, her details are attached to her replys below.
The treatment Of The Disabled in Public Hospitals
I have a severe form of Epilepsy as part of my disabilities and even though I’m on high levels of anti convulsant medication I’m still having daily seizures,so tomorrow I am being Admitted to Beth Israel Hospital in New York city for exstensive neurological testing.
Like most life long Epileptics i have spent thousands of hours during my life in hospitals and neuro labs The trouble is since taking control of my own care as a adult some 30 years ago I, have never really found a totally competent hospital.
If I am Jewish or Islamic ,or blind , or I Eat kosher or Halal every Hospital bends over backwards to serve All my special needs and so they should, dignity should be respected whether religous or because of medical conditions , Then you get to the wheelchair bound and it has been my experience your put into the bed, your chair has been pushed into the corner out of your reach and there you sit like a lump on a stump hoping a wayward nurse might get lost and wonder in from time to time .
Well I have hopes for Beth israel, but never too high They obviously haven’t read my blog let alone the tone of my criticisms because they are letting me bring my smart phone and laptop. If Beth Israel is the exception I shall scream it from the top of my key board and if they are the same as my previous experience I shall name them and flame them so stay tuned to these pages and I’ll let you know .